Ivani’s genetic disease is worsening as she ages. Her mother hopes Australia’s new biobank will help
Exclusive: National Muscle Disease Bio-databank will store blood test and skin biopsy samples from children with diseases such as muscular dystrophy
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Bindu Shree remembers her daughter Ivani had “such a nice plump face as a baby”, but now she sees gravity pulling down her four-year-old’s cheeks as the muscles in her face become weaker.
When Ivani was diagnosed with a genetic muscle disease at four months, Shree’s first response was to ask the doctors: “What’s the treatment? What can we do to help her?”
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